Job Accommodation Network (JAN)
A Service of the U.S. DOL Office of Disability Employment Policy
West Virginia University
P.O. Box 6080
Morgantown, WV 26506-6080
800-526-7234 (Voice & TTY) & 800-ADA-WORK (Voice & TTY)
http://www.jan.wvu.edu

Office of Disability Employment Policy
1331 F Street, NW
Washington DC 20004-1107
202-376-6200/202-376-6205 (TTY)
http://www.dol.gov/dol/odep/

Center for Disease Control and Prevention (CDC)
1600 Clifton Rd.
Atlanta, GA 3033
404-639-3534
http://www.cdc.gov

The CDC promotes health and quality of life by preventing and controlling disease, injury, and disability.

Facioscapulohumeral Dystrophy (FSHD) Society
3 Westwood Road
Lexington MA 02173-1833
781-860-0501
http://www.fshsociety.org

The FSH Society is a nonprofit and tax-exempt U.S. corporation, organized in 1991, that address issues and needs related to facioscapulohumeral muscular Dystrophy (FSHD).

International Myotonic Dystrophy Organization
PO Box 1121
Sunland, CA 91041-1121
(866) 679-7954    (this number is toll free in the USA)
(815) 477-0047
http://www.myotonicdystrophy.org

This site is devoted to information about Myotonic Dystrophy (MD) and Congenital Myotonic Dystrophy (CMyD), both forms of muscular dystrophy.  Also contained in this site is information on Congenital Muscular Dystrophy (Thompsen's disease), which is a separate condition but in some cases having similar symptoms.

Muscular Dystrophy Association (MDA)
3300 E. Sunrise Drive
Tucson, AZ 85718
800-572-1717
http://www.mdausa.org

MDA is the source for news and about neuromuscular diseases, research, and services for adults and children with neuromuscular diseases and their families.

Muscular Dystrophy Association of Canada
2345 Yonge St, Suite 900
Toronto, ON M4P 2E5
800-567-2873/416-488-0030
http://www.mdac.ca

MDA of Canada is a national voluntary agency that is committed to funding leading research to find the causes, treatments, preventions, and cures for MD.

The Muscular Dystrophy Family Foundation, Inc.
615 North Alabama Street, Suite 330
Indianapolis, Indiana 46204
800-544-1213
http://www.mdff.org/

The Muscular Dystrophy Family Foundation, Inc. provides services, resources, home medical equipment, and adaptive devices to help people with MD.

National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
National Institutes of Health (NIH)
1 AMS Circle
Bethesda, Maryland 20892-3675
301-495-4484
http://www.nih.gov/niams

NIAMS is one component of NIH that conducts research and disseminates information on diseases of the musculoskeletal system and the skin.

National Organization for Rare Disorders (NORD)
PO Box 8923
New Fairfield, CT 06812-8923
800-999-6673/203-746-6518
http://www.rarediseases.org

NORD is a federation of voluntary health organizations that is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Parent Project for Muscular Dystrophy Research
125 Marymount Court
Middletown, OH 45042
800-714-KIDS (-5437)/513-424-7452
http://www.parentdmd.org

The Parent Project for Muscular Dystrophy Research, Inc. is committed to expedite a treatment and cure for Duchenne and Becker Muscular Dystrophy.