This card has been available in England for a few years and has helped its members immensely. If you would like a card, send us an email with your snail mail information - each family member should have a card, so let us know how many to send to you. Fill out the form: Click here!

USA National Registry The National Institute of Health has appointed the University of Rochester, Rochester, NY USA as the National Registry for Myotonic Dystrophy.

This registry is going to track all people in the USA who register and also will select for research studies out of these registrants. If you want the latest and greatest information and ability to get into some studies click here for their website.